My name is Maureen , and I was diagnosed with Myeloma in 2017 at the age of 55 and was fortunate to have been invited to join a clinical trial. This was successful and my myeloma is currently in remission and being monitored.

My diagnosis was life-changing, but I refuse to let myeloma define me.

The most valuable thing my consultant told me was to view myeloma as a chronic condition. It will return at some point but there will be a number of treatment options available to me. This has given me a lot of comfort, helps me through my sad myeloma days and allows me to live my life with a positive outlook. I now focus on things and people who make me happy and make life better and as normal as possible.

I try my best to live a healthy lifestyle. I eat well and don’t deny myself treats as it’s important that I’m kind to myself.

Knowing the limitations myeloma and its treatment can place on daily life, I try to fit as much into my days as possible. I plan at least one nice event with those who are close to me each month; some cost very little.

I personally find nature and the outdoors uplifting. They have had a much appreciated positive impact on my well-being and played a more significant part of my life since my diagnosis. I enjoy gentle walks, visiting parks, gardens and places on my travel bucket list and also my allotment.  I strategically position some of these events as a celebration of my continued remission.

My activity as a patient advocate has allowed me to better understand my condition and live well with it. I have been able to keep up to date with the latest developments and also give support to and receive support from others with a common interest in myeloma. It has and continues to be an important part of my myeloma journey.

Check Faces of myeloma series to read more stories.