What we do

Subscribe to
our newsletter!

14:00 – 17:00	Participants check-in and registration
19:00 – 22:00	Welcome dinner at the hotel restaurant

09:00 – 09:15	Welcome Lise-lott Eriksson, President of MPE
09:15 – 10:30	Plenary session 1 – Myeloma and AL amyloidosis treatment updates Dr Albert Oriol, Head of the Clinical Research Unit, Institut Català d’Oncologia (ICO)
10:35 – 11:35	Plenary session 2 – Side effects and management of myeloma and AL amyloidosis treatment Dr Charlotte Pawlyn, Haematologist and Clinician Scientist, Cancer Research UK
11:35 – 12.00	Coffee break
12:00 – 13:15	Plenary session 3 – Real World Evidence (RWE) Karen Facey, PhD CStat Hon MFPH, FIPRA Public Affairs, Senior Advisor – Health Technology Assessment Dr Jelena Bila, Professor Dr sci med, Head of the Ward at Clinic of Hematology, University Clinical Center of Serbia Martine Elias, Executive Director, Myeloma Canada

13:15 – 14:30

Morning session close and lunch break

14:30 – 15:30

Breakout session 1 – Shared decision-making: improving effective communication between the patient and the medical team

Breakout session 2 – Addressing challenges and importance of the European Young Myeloma Patients Group

Ellen Watters, Myeloma Information Specialist, Myeloma UK
Vincent Claus, Myeloma Patient and Leader of European Young Myeloma Patients Group, Belgium

15:30 – 16:00

Coffee break

16:00 – 17:00

Plenary Session 4 – Cross-border access to medicine and trials

17:00 – 18:00

Poster presentations and info stands
(15 mins poster introduction and 45 mins presentation)
Member programmes, success stories and MPE projects

20:00 – 23:00

Offsite dinner

09:00 – 09:15	Welcome
09:15 – 10:30	Plenary Session 5 – EU Health Technology Assessment Regulation Valentina Strammiello, Director of Programmes, EPF project portfolio and represents EPF in HTA-related activities in the European Health Parliament initiative Karen Facey, PhD CStat Hon MFPH, FIPRA Public Affairs, Senior Advisor – Health Technology Assessment
10:30 – 11:00	Coffee break
11:00 – 11:30	Video screening – “Myeloma is our story”
11:30 – 12:45	Panel Discussion 1 – Supportive care for myeloma and AL amyloidosis patients Surabhi Chaturvedi, Senior psychotherapist and team lead (Haemato-Oncology/ Transplant/ CAR-T) at King’s College Hospital NHS Foundation Trust Orla McCourt, Clinical academic physiotherapist at University College London Hospitals NHS Foundation Trust (UCLH) Nada Rotovnik Kozjek, PhD, MD, Head, Clinical Nutrition Unit, Institute of Oncology Ljubljana, Slovenia Christine Skeet, Nurse Specialist, Eastbourne, England, United Kingdom
12:45 – 12:55	Clinical Trial Navigator launch Solène Clavreul, PhD, Head of Medical Education and Scientific Engagement, MPE
12:55 – 13:00	Masterclass close
12:55 – 13:00	Farewell lunch